Long-term care for the elderly and disabled people: motivations for turning to various care providers
Abstract
The last years of life are often accompanied by health deterioration, the emergence of functional limitations that prevent the preservation of autonomy, and, as a result, an increasing need for long-term care. The unavailability of care or its poor quality can negatively affect the quality of life.
This paper contributes to the discussion about the organization of long-term care. In the domestic scientific literature, the institutional features of the organization of long-term care and the functioning of various care providers have been largely studied, but there are practically no studies of the preferences of various population groups that shape the demand for care. The aim of this paper is to analyze the preferences and willingness of the population of Russia’s regions to turn to providers of formal and informal care for the elderly and people with disabilities.
The empirical basis of this paper is data of focus groups and semi-structured interviews conducted in the Republic of Tatarstan (2020-2021) and in the Republics of North Ossetia-Alania and Karelia and in the Oryol region (2019). The results of qualitative studies show that the population of the regions is rather conservative about long-term care. In a situation of hypothetical choice, older people would prefer the help of relatives, and younger people in general are ready to provide it, sometimes requesting support from professionals. At the same time, among formal care providers, state social workers are most in demand. A common feature of attitudes towards the long-term care system is the unwillingness to pay for care.
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References
Armstrong‐Esther C.A., Sandilands M.L., Miller D. (1989). Attitudes and behaviours of nurses towards the elderly in an acute care setting. Journal of Advanced Nursing, 14(1), 34–41. DOI: https://doi.org/10.1111/j.1365-2648.1989.tb03402.x
Bettio F., Verashchagina A. (2010). Long-term care for the elderly: provisions and providers in 33 European countries. DOI: https://doi.org/10.2838/87307
Bogdanova E. (2019). Rezhim zaboty o pozhilykh malomobil’nykh lyudyakh v periferiynykh poseleniyakh: uspekhi i neudachi v preodolenii sotsial’nogo isklyucheniya [Care regime for elderly people with limited mobility in peripheral settlements: successes and failures in overcoming social exclusion]. Kriticheskaya sotsiologiya zaboty: perekrestki sotsial’nogo neravenstva [The Critical Sociology of Caring: The Crossroads of Social Inequality], 277–310. (In Russ.) Retrieved from http://cisr.pro/files/Bogdanova_kriticheskaja_zabota-1.pdf
Eferina T.V., Lizunova V.O., Prosyanyuk D.V. (2014). Mekhanizmy povysheniya kachestva sotsial’nykh uslug: razgosudarstvleniye sfery sotsial’nogo obsluzhivaniya naseleniya [Mechanisms for improving the quality of social services: privatization of the social services sector]. Sotsial’noye obsluzhivaniye [Social Services], 2, 1–15. (In Russ.) Retrieved from https://ac.gov.ru/archive/files/content/1828/statya-eferina-lizunova-prosyanyuk-2-red-pdf.pdf
Grishina E.E., Tsatsura E.A. (2019). Razvitiye negosudarstvennykh sotsial’nykh uslug dlya pozhilykh: bar’yery i puti ikh preodoleniya [The development of non-state social services for the elderly: barriers and ways to overcome them]. Russian Journal of Labor Economics, 6(4), 1475–1490. (In Russ.) DOI: https://doi.org/10.18334/et.6.4.41209
Grishina E.E., Tsatsura E.A. (2020). Vliyaniye rodstvennogo ukhoda na zanyatost’, zdorov’ye i material’noye polozheniye ukhazhivayushchikh [The effect of caring for older and disabled relatives on the employment, health and economic status of caregivers]. Demographic Review, 7(2), 152–171. (In Russ.) DOI: https://doi.org/10.17323/demreview.v7i2.11142
Hernández-Pizarro H.M. (2017). Essays on long-term care. Barcelona: Universitat Pompeu Fabra. Retrieved from https://www.tdx.cat/handle/10803/456565#page=38
Kemper P. (1992). The use of formal and informal home care by the disabled elderly. Health Services Research, 27(4), 421–451. Retrieved from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1069888/
Maleva T.M., Ovcharova L.N. (2010). Rekomendatsii po dolgosrochnym i kratkosrochnym meram v sotsial’noy politike [Advices on long-term and short-term social policy measures]. Economic Policy, 1, 15–26. (In Russ.) Retrieved from https://ecsocman.hse.ru/data/2012/11/21/1251381312/2.pdf
Mersianova I.V., Benevolenski V.B. (2017). NKO kak postavshchiki sotsial’nykh uslug: verifikatsiya slabykh storon [NPOs as social services providers: organizational weaknesses verification]. Public Administration Issues, 2, 83–104. (In Russ.) Retrieved from https://vgmu.hse.ru/2017--2/206993080.html
Mironova A.A. (2021). Mezhdunarodnyy opyt organizatsii rodstvennogo ukhoda za pozhilymi lyud’mi [International experience in the organization of informal care for the elderly]. The Journal of Social Policy Studies, 19(3), 456–480. (In Russ.) DOI: https://doi.org/10.17323/727-0634-2021-19-3-465-480
OECD (2020). Who Cares? Attracting and Retaining Care Workers for the Elderly, OECD Health Policy Studies. Paris: OECD Publishing. DOI: https://doi.org/10.1787/92c0ef68-en
Paraponaris A., Davin B., Verger P. (2012). Formal and informal care for disabled elderly living in the community: an appraisal of French care composition and costs. The European Journal of Health economics, 13(3), 327–336. DOI: https://doi.org/10.1007/s10198-011-0305-3
Sinyavskaya O.V. (2018). Stareniye kak sotsial’no-ekonomicheskiy fenomen [Aging as a socio-economic phenomenon]. Pensionnoye obozreniye [Pension Review], 3(35). (In Russ.) Retrieved from http://pensionobserver.ru/46831
Stoltz P., Uden G., Willman A. (2004). Support for family carers who care for an elderly person at home–a systematic literature review. Scandinavian Journal of Caring Sciences, 18(2), 111–119. DOI: https://doi.org/10.1111/j.1471-6712.2004.00269.x
